This week STA met up with local muso Lachy Beckett at the beautiful Bowral Honey Farm to talk about Myositis Awareness Month this May.
At the age of 3 Lachy was diagnosed with a rare form of Myositis called Juvenile Dermatomyositis (JDM). While he has been in remission since the age of 8, the experience has led Lachy to a lifelong commitment to help spread awareness about rare diseases through sharing his own story.
As a singer and songwriter Lachy shares his story in song with the ultimate goal to produce an album of songs about his experiences living with a rare disease.
Lachy is a Myositis Association Australia (MAA) Rare Voices Ambassador and works to raise awareness of rare diseases in the local community and across Australia

Watch Lachy talk about his experience with Win News – Rare Voices Australia #WINNews
Follow Lachly at his instagram @lachybeckettmusic
and via Linktree 

Thanks to Hamish at Bowral Honey Farm